What should we say in the face of the knowledge that a loved one feels poorly? We don't want them feeling that way for long, and we want them to know it - what else can we say? I took some time to compile a list of all the things you could say to spoonies instead.
When pain is invisible, it is easy for it to be underestimated or ignored altogether. Filming my day helped me feel visible, and felt like an important move in my advocacy journey.
For World Mental Health Day, I've written about my experience of chronic pain & its effect on my mental health. CW: depression, anxiety, self-harm, suicidal ideation. Look after yourselves ❤
A poem about how pain can feel like it takes over your identity. Written in a flare. Any Spoonies who can relate, please make yourself known in the comments!
For me, every month is pelvic pain awareness month. Nevertheless, I thought I'd honour this by completing the 'Spoonie' blogging tag and carry on my 'Diary of a Broken Vagina' series. Prepare to know me a lot better.
For the disciples, the hours must have seemed like eons. The day after Jesus' death was the day everything looked like it had gone horribly, horribly wrong. Holy Saturday is the day when the disciples are waiting, and God doesn't show.
Want to know more about chronic pelvic pain, self-help, and vaginas more generally? Of course you do. Here's my entirely-not-definitive list of useful articles, books and even the odd video.
For about seven years now, I have lived with a dirty secret. When it first came to my attention aged 17, I kept it to myself, letting it rot inside me and making me feel utterly freakish and disgusting.
As anyone with chronic pain will tell you, sometimes the huge effort it takes to do little things, like make a cup of tea or shower, really grinds you down. So when something big comes up, it can really knock you for six. Like, for example, having to make the significant decision to quit your Master’s degree because you’re not well enough to finish it.
WARNING. DO NOT READ THIS ARTICLE IF YOU ARE SQUEAMISH ABOUT FEMALE BODIES AND/OR DON'T WANT TO KNOW ANYTHING ABOUT MINE AND/OR ARE MY DAD.