A recent sonnet, written for a friend whom I love. It's hard to see your loved ones hurt themselves.
When pain is invisible, it is easy for it to be underestimated or ignored altogether. Filming my day helped me feel visible, and felt like an important move in my advocacy journey.
A poem about how pain can feel like it takes over your identity. Written in a flare. Any Spoonies who can relate, please make yourself known in the comments!
For me, every month is pelvic pain awareness month. Nevertheless, I thought I'd honour this by completing the 'Spoonie' blogging tag and carry on my 'Diary of a Broken Vagina' series. Prepare to know me a lot better.
As anyone with chronic pain will tell you, sometimes the huge effort it takes to do little things, like make a cup of tea or shower, really grinds you down. So when something big comes up, it can really knock you for six. Like, for example, having to make the significant decision to quit your Master’s degree because you’re not well enough to finish it.
Before I proceeded any further, I had to go over my protagonist’s timeline to get a sense of what was happening when. As any first-time writer would, I have structured my story as a series of fragments, not in chronological order. Because of course, when you’re embarking on your first novel, you should always try and make it as difficult for yourself as possible.
All my life, I have never feared being creative. As a woman and now as a resigned member of the disabled community, I am passionate about rights, and standing up for those to weak to fight for them. Sadly, in recent years I have joined their number - after so many months of fighting just to make it through a day without contorting into the foetal position, I have become too tired to feel in any way effective.