What should we say in the face of the knowledge that a loved one feels poorly? We don't want them feeling that way for long, and we want them to know it - what else can we say? I took some time to compile a list of all the things you could say to spoonies instead.
When pain is invisible, it is easy for it to be underestimated or ignored altogether. Filming my day helped me feel visible, and felt like an important move in my advocacy journey.
For World Mental Health Day, I've written about my experience of chronic pain & its effect on my mental health. CW: depression, anxiety, self-harm, suicidal ideation. Look after yourselves ❤
A poem about how pain can feel like it takes over your identity. Written in a flare. Any Spoonies who can relate, please make yourself known in the comments!
For two years, I had the privilege of dating a wonderful young man. This is the letter I wrote him but never sent - redrafted with added years of hindsight (which, as we all know, is 20/20). It's about love, and remorse, and theft, and getting things totally, totally wrong.
Want to know more about chronic pelvic pain, self-help, and vaginas more generally? Of course you do. Here's my entirely-not-definitive list of useful articles, books and even the odd video.
As anyone with chronic pain will tell you, sometimes the huge effort it takes to do little things, like make a cup of tea or shower, really grinds you down. So when something big comes up, it can really knock you for six. Like, for example, having to make the significant decision to quit your Master’s degree because you’re not well enough to finish it.
It’s like the worst Blind Date episode ever. I don’t want any one of the three mystery bachelor drugs, you can all get in the sea.
Featuring my Mum, my novel, and a PAIN FREE DAY!
Featuring Twitter exchanges, mulled wine tea and nice-smelling candles.