When pain is invisible, it is easy for it to be underestimated or ignored altogether. Filming my day helped me feel visible, and felt like an important move in my advocacy journey.
For about seven years now, I have lived with a dirty secret. When it first came to my attention aged 17, I kept it to myself, letting it rot inside me and making me feel utterly freakish and disgusting.
As anyone with chronic pain will tell you, sometimes the huge effort it takes to do little things, like make a cup of tea or shower, really grinds you down. So when something big comes up, it can really knock you for six. Like, for example, having to make the significant decision to quit your Master’s degree because you’re not well enough to finish it.
I totally forgot about #thankfulThursdays! Here’s my belated post… Filled-With-Gratitude Friday, anyone?
Yesterday I made the exciting and slightly terrifying decision to sign up for National Novel Writing Month (“NaNoWriMo” for short – ‘cos even writers love abbreviations…). I can do it, for the good of the cause, i.e. actually finishing a bloomin’ story for the first time in my life.
In honour of Invisible Illness Week, I answer the '30 Things' tag about my invisible illness. Find out more at http://www.invisibleillnessweek.com.
This week, I'm feeling 22 (ooh ooh), and also, apparently, about 8.
That’s the paradox of chronic pain. Stress and tension makes the pain worse. But pain makes you stressed and tense! In the words of the love of my life, Ron Weasley: ‘Kill us faster? Oh, NOW I can relax!’
Is it possible my vulvodynia is somehow caused by muscle tension in the pelvic floor?
More often than not, we chronic pain warriors have another huge fight on our hands: getting the right treatment. It’s a long old slog. Like Frodo on his perilous quest, the path is twisted and arduous, and you’ve usually got one dim-witted friend dragging you back pining about potatoes, a slimy little creature intermittently spitting venom at you, and a whole host of characters to meet before you get one treatment to cure them all.