When pain is invisible, it is easy for it to be underestimated or ignored altogether. Filming my day helped me feel visible, and felt like an important move in my advocacy journey.
A poem about how pain can feel like it takes over your identity. Written in a flare. Any Spoonies who can relate, please make yourself known in the comments!
As anyone with chronic pain will tell you, sometimes the huge effort it takes to do little things, like make a cup of tea or shower, really grinds you down. So when something big comes up, it can really knock you for six. Like, for example, having to make the significant decision to quit your Master’s degree because you’re not well enough to finish it.
It’s like the worst Blind Date episode ever. I don’t want any one of the three mystery bachelor drugs, you can all get in the sea.
That’s the paradox of chronic pain. Stress and tension makes the pain worse. But pain makes you stressed and tense! In the words of the love of my life, Ron Weasley: ‘Kill us faster? Oh, NOW I can relax!’