When pain is invisible, it is easy for it to be underestimated or ignored altogether. Filming my day helped me feel visible, and felt like an important move in my advocacy journey.
For World Mental Health Day, I've written about my experience of chronic pain & its effect on my mental health. CW: depression, anxiety, self-harm, suicidal ideation. Look after yourselves ❤
A poem about how pain can feel like it takes over your identity. Written in a flare. Any Spoonies who can relate, please make yourself known in the comments!
WARNING. DO NOT READ THIS ARTICLE IF YOU ARE SQUEAMISH ABOUT FEMALE BODIES AND/OR DON'T WANT TO KNOW ANYTHING ABOUT MINE AND/OR ARE MY DAD.
In my first meeting with the Women’s Health Physiotherapist, she did an internal examination. In the second meeting, she forgot my name. No, she couldn’t remember my name, but she’d had her fingers inside my vaginal tract. Welcome to the weirdness of pelvic floor therapy.
Yesterday I made the exciting and slightly terrifying decision to sign up for National Novel Writing Month (“NaNoWriMo” for short – ‘cos even writers love abbreviations…). I can do it, for the good of the cause, i.e. actually finishing a bloomin’ story for the first time in my life.
In honour of Invisible Illness Week, I answer the '30 Things' tag about my invisible illness. Find out more at http://www.invisibleillnessweek.com.
This week, I'm feeling 22 (ooh ooh), and also, apparently, about 8.
That’s the paradox of chronic pain. Stress and tension makes the pain worse. But pain makes you stressed and tense! In the words of the love of my life, Ron Weasley: ‘Kill us faster? Oh, NOW I can relax!’
Is it possible my vulvodynia is somehow caused by muscle tension in the pelvic floor?